Respite?

I am glad we had a brief break, but it wasn't enough for what happened right after my last post.

In a nutshell, Carson had a reaction about 30-40 minutes into the IGG infusion, which then caused a host of other problems and kept everyone around here busy until 2:00 AM.

To stop the uncontrollable shaking/chills, the vomiting and the diarrhea, Carson got an IV push of a steroid. Once the shaking stopped, he then had a bad reaction to the steroid - or maybe it was a continued reaction to the infusion-and literally went crazy.

He was confused, angry, scared and violent. He ripped out his IV port on his chest. They had to reaccess him with no numbing cream - and of course, it took 2 tries instead of 1.

Once accessed, they gave him adivan to stop the steroid reaction. His fever was still pretty high, so he also had more Tylenol. He finally calmed way down and was asleep by 2:00. He slept straight through until 7:30.

All the while, Paul is flying from Sydney to San Francisco with no idea what is happening. I don't quite know how I will tell him when he arrives here later tonight.

This morning, Carson is tired and weak, but doing fairly well. In fact, his fever has not come back since the 2 AM Tylenol dose. A piece of good news!!!

The doctors say that he only got 10% of the dosage of the IGG that he was to be given. Not exactly a lot to boost his levels. They will retest the levels again today and see if he has reached 250. Yesterday he was 165 and normal is around 450-500. If he isn't 250, they are going to consider trying the infusion again, with different (and more) premedications and a different brand of the IGG - and not late at night either.

I do not want to try again, I cannot take it. I cannot watch Carson go through that again. I will pray that his levels are 250. Please join me in that prayer today.

-Jennifer