Saturday, September 24, 2011

Is it Steroids Week?

Is is Steroids week? Hmmm....let's see, today went something like this:

Breakfast: a bagel
Lunch: 2 plates of bread sticks from the local pizza buffet
Dinner: biscuits

Add in the nonstop talking and you have your answer: It's definitely a steroids week.

Paul.

Wednesday, September 21, 2011

Kindergarten Update, Counts and a Race

Yesterday Carson had his first full day of Kindergarten. Check off another milestone! Following that, he had his first "sports class". The coach ran them around for a good 45 minutes through an "agility course". He was all smiles after each activity, then melted down from pure exhaustion about 7:00. He was promptly put to bed. I had to wake him up at 7:30 this morning so he wouldn't miss the bus. Luckily, Wednesdays at Kindergarten are only half days. The boy can catch up on some rest. He has chosen to do so by watching a "Curious George" marathon.

Monday at the clinic was again a repeat of "Carson's Continuing Counts Saga". A week out from his virus and ER visit, his ANC came in at about 3000. Too high, so the 6MP dosage will rise and we will watch and see. Vincristine, Pentamadine and Prednisone were administered as well. We are on Day 3 of steroids and so far; it looks like Carson will be living off of Honey Nut Cheerios during his steroid week.

In other news Francesca completed her first 5K in the Falls Church Education Foundation Race for the Schools. Paul ran with her and they were still speaking to each other after it was over. So....it was a good run!



Hope everyone has a great rest of the week!
-Jennifer

Sunday, September 11, 2011

Kindergarten Can Wait

Kindergarten can wait....at least until Tuesday. Monday Carson will be at the clinic for a follow up dose of IV antibiotic.
Ahh, I love a dose of cefepime and a Bruder catalogue in the morning!


Good news though: Counts are high. We will go home and follow up with the clinic tomorrow. No hospital.

Thanks for all the prayers this morning!
-Jennifer

Official

I was supposed to be writing about Carson's first week of Kindergarten, but instead I'm sending a quick update. It's official, school and all its germs are in session. Carson is headed to the ER with a fever. His counts were high just over a week ago, so we are hoping for the same result. That would mean a "quick" trip through the ER and no admit to the hospital.
More later.

-Jennifer

Sunday, September 4, 2011

Tears/Rerun

I'm not normally a crying person, but this darn cancer has me weepy at times I wouldn't expect. This week's tears found me at Kindergarten Orientation crouched next to Carson's school supply basket - there was his name neatly written on all his perfect and yet untouched sets of crayons, markers, scissors and pencils. So Beautiful!!! I couldn't help but think about how two years ago we weren't sure how long we'd have with our guy, or what the next days would bring, and here we are at Kindergarten!!! I'm so glad God gave us this moment to cherish!

Carson with Mrs. Hof (She was also Francesca's Kindergarten teacher!)

Our clinic visit this week was pretty much a rerun of those past. The ANC has risen some more, so we will add more 6MP and return in two weeks. I'm not sure how the start of school (plus all the germs) and an increase in meds will turn out; but as usual, we will know soon.

-Jennifer