- The spinal tap/chemo treatment went well on Monday. They used a different cocktail of sedation drugs than they do at the hospital. Carson was "awake" - I use the term loosely - during the procedure. He did not have to spend many, many hours without food and he doesn't appear to remember anything that happened during the 15-20 minute procedure. We will be doing the same thing for the next 4 Mondays.
- We received some new chemo drugs last Monday. The only side effect we've seen is a complaint of a headache a few times - and Tylenol seems to solve that. No fevers or trips to the ER this week!
- One of the new chemo drugs is given through Carson's port for 4 days in a row. Paul and I both had the chance to try out our nursing skills this week and administer the drug for 2 days at home. This is supposed to go smoothly, if your port and tube cooperate. Ours did not choose to do so. We got to go to the clinic Monday, Tuesday, Wednesday and Thursday. Thank goodness we only live a little over 1 mile away from the clinic!
- We get to try to administer "Ara-C" at home again next week! Please work for us "tubey"!
-Jennifer
Hi Jennifer,
ReplyDeletefirst of all happy birthday. I know I'm late but I just got back from Piancavallo, one of the few places left in the world without internet. Gianpaolo loved the video of Carson blowing the candles, we watched it over and over. And of course he wanted to get some candles too.
Glad to see that Francesca is back, Emily was please to read that she is not alone when it come to deal with a younger brother that gets into everything she has.
Say hi to your mom for me, they are really a great help!!! My dad is turning 70s next month and we are planing a big family reunion to thank him for all the support he has giving us.
Dear Jennifer, I think of you everyday, praying the Lord that Carson gets well soon and that you and Paul stay strong.
Thanks for keeping us informed.
Love Cristina