Carson is on a "blood high" this weekend thanks to a transfusion on Friday. He is way too busy playing cars to eat, to sleep, or to notice the sores in his mouth. His little bald head is a flash of light as he runs back and forth between the play room and the living room, carrying different cars and trucks with which to play, setting up fire and police stations all over the couches and coffee table. I hear later today he'll be running a marathon - his mouth already has a head start - it has been running constantly!
I hope he saves some of his energy for the busy week we have in store. Monday is scheduled as another clinic day. Carson will receive another chemo treatment in the spine and an IV push of Ara-C. We'll continue the Ara-C at home Tuesday and Wednesday, then head back to the clinic on Thursday for a counts check and one more of the Ara-C treatments.
Friday is a new day, however. We will all trek to the hospital to get prepared for cranial radiation. Carson will be sedated, they will make a special mask for his face and mark the exact spots where he'll receive his radiation. He won't receive any radiation on this day, but it will mark our entry into this phase of treatment. Needless to say, we are very anxious. There are so many risks to radiation, but we really have no choice in the matter. The central nervous system is one place where leukemia cells can hide out for awhile, then reappear later on. We can't take the risk of leaving that area untreated. A strange upside to all of this is that when radiation is over....we will be done with the heavy treatment. We'll move into the 3 year maintenance cycle and our life might actually be less complicated!
So, until then, please keep praying with us. Pray for the energy to see this thing through. Pray for Carson's continued good spirits, energy and appetite. Pray for both Friday March 5 and March 15-25, the scheduled dates of our radiation appointments. Pray for calmness on all of our parts and pray for the doctors, technicians and nurses. I see some light appearing at the end of this dark tunnel. God's goodness and strength, your prayers and support have carried us through.
-Jennifer
Saturday, February 27, 2010
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My thoughts and prayers continue for Carson...and all your family ! A hard road to travel, but you are surounded with God's love and Presence as you go. I always pray for you (each one of you) in the mornings between 6:30 and 7:30, and...almost any other time of day, since you so often come into my tho'ts..Thanks for keeping us possted ! Love to all Your former nneighbor and continuing friend...Noralee
ReplyDeleteDear Jennifer, it's tuesday morning and I just read the blog. Hopefully the home treatment will work just fine and ...yes there is light at the end of the tunnel, and I`m so glad you start to feeling too. You all are in our prayers constantly, but will try even harder on those days. I love that you have the strength to keep us post it, we fell the love flowing. Big hugs to all. Lots of love, Cristina, Alex, Emily and Gianpaolo
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