Tuesday, October 30, 2012

What Carson Did This Summer - Part I

This has been a long time in coming, but Carson got to do some REALLY cool things this summer.

The first was the opportunity to be a patient escort for Bobby Mitchell's Hall of Fame Golf Classic benefiting the Leukemia and Lymphoma Society.


Carson's Patient Escort Badge:  His Ticket to the Event


This was no small event, but rather a weekend of events that included a black tie dinner on Saturday night.  Some 30-40 Hall of Famers give of their time for the weekend.  Various companies and individuals buy tables and enter the golf classic for the privilege of eating with, playing a round of golf with, spending time with these amazing athletes for the weekend.  Bobby Mitchell, a hall-of-famer himself and former Washington Redskin, has been lending his name and credentials to this event for 20 years!

I don't know if Carson realized what esteemed company he was keeping that Saturday evening, but he may later in life.

The first step in getting ready for the event was finding the right outfit.  Carson elected to wear his dark suit with a light blue shirt and striped tie.  He even decided it was important enough to skip the tennis shoes and instead go out and get some real dress shoes.  He was really excited about them.

We arrived at the event early to receive our instructions and rehearse a bit.  Carson practiced coming out from behind a curtain, walking to the center of the room, then returning to his place behind the curtain to pick up the next athlete.  He looked great, and certainly looked like he knew what he was doing, but I wondered how it would be when he was doing it in front of about 300 people.  He was the youngest escort by at least a few years, most of the others were probably between the ages of 10 and 13.

It sure looked like it was going to be fun; but we had fun even before the event got started.   As it turns out, Carson was given a special program with photos of all the Hall of Famers and the teams they used to play for.  We were ushered into the VIP room of the hotel and there, Carson got to collect autographs from all the players he could harass.  They were great and Carson collected about 30 signatures from names such as Meadowlark Lemon, Larry Little, Mel Renfro, Jan Stengrud and more.


Tom Mack??  of the L.A. Rams

Thanks for the autograph Meadowlark.....

Carson with Larry Little of the Miami Dolphins

Next, it was time for the dinner.  Carson and the other escorts took their place behind a black curtain, the athletes lined up, the lights were low, the spotlights were on, the attendees were all waiting at tables, the closed circuit cameras were panning the crowd, the emcee was speaking.  And then, he decided to introduce the patient escorts one by one.  I thought "uh-oh!  Carson's going to be shy for this", and I was COMPLETELY wrong.  When Mr. was introduced, he stepped right out from behind the curtain, spotlight shining full force on him, cameras transmitting his image on multiple screens and thunderous applause ensuing.  He waved and smiled and didn't quit until someone tapped him on the shoulder to let him know it was time to return to his place BEHIND the curtain.

Then his "work" started and he was a pro.........I think he was the best escort out there, and if not that, certainly the most adorable - as a lady at one of the tables told me so!


The littlest escort seats the largest guy there...Willie Roaf of the New Orleans Saints.

All in all, Carson had the privilege of seating about 8 world class athletes.  What an honor!  I took lots of pictures so he can remember it later and, of course, we have the program with all the signatures that we are in the process of framing.

Thank you Leukemia and Lymphoma Society for such a great experience!

-Jennifer

Saturday, October 27, 2012

Preparation

"Frankenstorm" is heading this way, so we've received several calls this morning to ask what we are doing to prepare.

Let's see.....

Rake leaves,

Toilet paper,
Water,
Diet Coke,
Chips and Salsa,

IGG infusion.......

Yep, we're all prepared!

Carson began complaining of his ear early, early Friday morning.  An unplanned visit to the clinic yesterday revealed a red, bulgy fluid filled right ear, elevated counts and the usual congestion.  Since it had been 8 weeks since his last IGG infusion, We all elected to go ahead with IV IG even without knowing the counts.  Chances are good his levels are low again, and no one wants to be heading to the hospital in the middle of the storm.

This morning he's feeling good and playing as usual.

We may avoid the ER this weekend.

Jennifer

Wednesday, October 17, 2012

October 15

I will remember October 15, just like I remember November 16, November 18,  December 21, July 10 and July 25.

November 16, 2005:  Carson's birthday

November 18, 1997:  Francesca's birthday

December 21, 1999:  Francesca's diagnosis of diabetes

July 10, 2009:  Carson's diagnosis of leukemia

July 25, 1992:  Our anniversary

October 15:  Carson's last scheduled spinal tap!  It went without a hitch. 







Here's to more happy dates to remember - the next one November 9:  Carson's last scheduled chemo and steroid round.

-Jennifer